Observations from a guest of society.
(the marking on the wall is from the IChing; hexagram #25 - "Without Deceit"/"Forget #Me Not"/"Innocence")
https://blurt.media/w/49JjbmywAsBhCYqYxSLtPR
#blog #artist #uk #ukraine #usa #linux #gaming #photography #socialism #reading #books #food #politics #music #art #matrix #blurt #bravesmoke #europe #money #life #love #monsterdon #movie #retro #fashion #webdev #crypto #travel
#me
35 posts · Last used Oct 05
"Thanks for the drive" ❌
"I'm a creature" ✔️
"I will pay for you" ❌
"I think I may be a creature" ✔️
"How was your day" ❌
"Did you know I'm a creature" ✔️
#me-when-im-a-freakinge-creature
Direct Aid For Disabled Comrade
Recaudación De Fondos Para Camarada Discapacitado
fundraising for medication and treatments
hi! i'm demian, and i have long covid and ME. the spanish government ignores these illnesses, leaving me to fend for myself. i need money for medication and treatments.
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recaudación fondos para medicación y tratamientos
hola! soy demian y tengo covid persistente y ME, el estado español ignora estas enfermedades, dejándome a la deriva. necesito dinero para medicación y tratamientos.
tengo paypal y ko-fi (bizum doy por mail mvione@proton.me)
https://camaradademian.cowsite.net/14324.html
#directaid #disabled #mutualaid #longcovid #ME
“…in the UK alone, an estimated 400,000 people live with the condition… The number of people with long Covid… was estimated in 2024 at 2 million in England and Scotland.”
https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed
#ME #LongCovid #CFS #ChronicFatigue
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Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
Abandoned, dismissed and gasli...
Boosted by @trending@homestead.social
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers:
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
So...
What _would_ happen if, say, Montenegro (the country behind ".me” -- https://domain.me/about-me/) decides to get the attention of the US and suspend id.me, which is used for logging in at a ton (most?) of federal and state websites?
https://id.me/government?source=wallet-homepage-v2
It would be no more unilateral than the autistici.org domain being suspended out of fear of US legal threats, or certain M365 accounts being disabled as a result of US sanctions, surely?
#me #DNS #Chaos #AutisticiInventati
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“My dad was a very quiet person, and unbelievably tough. But my grandmother gave me my first look at negative thinking to bring about positive results. When I was just a little guy, anytime I came to my grandmother and said I wish for this or that, Grandma would say, 'If wishes were horses, beggars would ride.'.”
― Bobby Knight
#Bot #Quote #Thinking #Me #Negative
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"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences"
https://www.theaustralian.com.au/health/medical/glandular-fevers-not-just-the-kissing-disease-as-kaylee-mckeown-found-out/news-story/c97eaf0b87503ffc9db4a4abe0aeee6d?amp
Archive
https://archive.is/4Tf0p
*aka Mono
#MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social
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NSFW X REPOST -> Camilla 💫 : https://x.com/camxcamxcow/status/2080154800168251400
Like I don’t care about that 😅🙈
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#fyp #me #woman #trend
🔞 Curated by @succucat@social.succukitty.com@social.succukitty.com
💖 Come follow me!
#NSFW #🔞 #XRepost #TwitterRepost
ME/CFS ist eine schwere neuroimmunologische Erkrankung und bisher kaum erforscht. Es gibt noch keine Behandlung, die ME/CFS heilt. Neben schwerem Leid für die Betroffenen verursacht die Krankheit auch immense gesellschaftliche Kosten für Deutschland.
#ChronischeKrankheit #LongCovid #ME/CFSResearchFoundation #Mecfs #Podcast #Forschungsquartett
Exciting new developments in research. Directly measuring ATP (and thus, energy) levels in the brain through MRI scans.
#me #cfs #mecfs #longcovid #PAIS
www.youtube.com/watch?v=TV9h...
086 - We can now measure the b...
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New research from sympathetic & knowledgeable Physios for ME team et al.
Experiences of pacing with a heart rate monitor for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Free fulltext:
https://www.tandfonline.com/doi/full/10.1080/21641846.2026.2681411
#MEcfs #PwME #ME #MyalgicE
@mecfs@fedigroups.social
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From Germany 🇩🇪
Evaluation of an Integrated Multidisciplinary Care Model for [ME/CFS]: A Prospective, Open-label, ...study
https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698
"Post-rehabilitation Bell Disability Scale scores decreased [i.e. worsened] In 42/94 (45%) and increased in only 13/94 (14%) patients"
#MEcfs #PwME #ME #MyalgicE
@mecfs@fedigroups.social


