#severeme

Therapy via Messaging https://chroniclivingtherapy.com/insights-text-based-therapy/ Screenshot from latest edition of the Chronic Living Therapy email bulletin #MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness@mecfs@fedigroups.social @longcovid@fedigroups.social #POTS @pots@fedigroups.social

From #MEAction for Severe ME Day (Aug. 8) "Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026" https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026 "#MEAction is proud to share the Severe ME Artists Project 2026! ... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community" 1/3 @mecfs@fedigroups.social#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

Today is Severe ME Awareness Day. As many folks here know, my girlfriend has severe ME resulting from Long COVID. I can only experience it from the outside. But what I know is that It is not simply “being really tired.” It is debilitating. It is incredibly painful. It is hell. It is often not believed. But it is real. And those who have it deserve all our love, support, and advocacy. #SevereME

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024) https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full #MEcfs #CFS #PwME #SevereME #SevereMECFS #SevereCFS #VerySevereME @mecfs@fedigroups.social